Background on Chalice's seizures

So, we spend more time preparing and feeding Chalice than anything else in our lives. We have estimated that we spend close to 9 hours a day on these activities. There are many times we have thought about pitching the whole thing because it is so time consuming and very draining trying to get her to eat. We really would just give it up if it weren't for the benefits. Chalice is basically seizure free with the diet and her one medication Clonazepam (sp?). She does ocassionally have a small stare or head drop but nothing like before being on the ketogenic diet. She usually only has seizures now if she is sick (cold, flu, etc.) or if she just refused to eat very well for a few days.

So the background on Chalice is that she has epilepsy (don't ask me what type because we never got a clear diagnosis). She basically has general seizures with random staring and head drops (which sometimes ends up in falling right on her face). If you are familiar with any of this, you know how terrible it is when your child continually has seizures and is falling on their face and has scratches and gauges all over. Originally when Chalice was diagnosed with epilepsy she was put on the medication Topamax (terrible medication). She experienced extreme learning and development delays while on this medication. We took her off of Topamax without "doctor ok" after she started taking Clonazepam. We are actually on neurologist number 3 now and we finally found someone who listens to us and will take the less risky path when it comes to Chalice's health. I could write a whole blog on doctors and I probably will at some point.